Support and Advocacy Officer

MPS Society UK, here for those with rare diseases

Amersham

At the MPS Society we aim to transform the lives of people affected by MPS, Fabry and related lysosomal diseases through specialist knowledge, support and advocacy, and research.

As a Support and Advocacy Officer you will join a skilled team who collectively provide a unique UK-wide support and advocacy service to over 1500 members.

You will primarily provide direct support and practical guidance to our MPS members and their families. You will raise awareness within both the MPS community and external agencies; and offer information, advice, support, and advocacy in a range of areas including health and social care, housing, education, transition, independent living, palliative care, and bereavement. You will also have the opportunity to contribute to the development of our resources and to facilitate and contribute to project work within our organisation such as youth engagement, advisory boards, and support groups.

What is MPS?

MPS and related conditions are rare and life... More Detail

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